Ingham Institute study into disease can help sufferers of MND

Technology can help.
Technology can help.

Nerve cells (neurones) control the muscles that enable us to move, speak, breathe and swallow. Motor-neurone disease, or MND, is the name given to a group of diseases in which these neurones fail to work normally. Muscles then gradually weaken and waste as neurones degenerate and die.

The Communication and Assistive Technology Clinic is seeking volunteers for a research project.

Here in south-west Sydney, there is a state-of-the-art Communication and Assistive Technology Clinic for those diagnosed with Motor Neurone Disease based at Liverpool Hospital.

Starting this month, a joint research project is being conducted by clinicians within the hospital and scientists across the University of Sydney, University of Technology Sydney and the Ingham Institute for Applied Medical Research.

The aim of this project is to identify if assessment and intervention within the Communication and Assistive Technology clinic within 12 months of MND diagnosis improves quality of life, function and decreases carer burden. The benefit of the project is to provide people with MND early access to assessment and intervention using Augmentative and Alternative Communication tools such as electronic tablets, switches and eye gaze and Environmental Control Units. This will allow sufferers to have both increased and improved choice and control while living with MND.

This project will take place over the next 12 months. Participants in this project will complete surveys and interviews in addition to standard care by specialised occupational therapists and speech pathologists.

The Communication and Assistive Technology Clinic is seeking volunteers for a research project.

You must have definitive diagnosis of MND, be at least 18, live in the area and understand English.

  • Details: swslhd-catclinic@health.nsw.gov.au or 8738 4701.

Ingham Institute for Applied Medical Research

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