NICOLE Cutler and her fiance Graham Hibbs are facing one of their most exciting, yet scariest times.
They are about to have their first child in January.
But the couple were in shock when they learned their little girl will be born with a birth defect, gastroschisis.
This causes the baby's intestines and sometimes other organs, such as the stomach, liver and bowel to grow outside the body.
After their little girl is born, she will need to have immediate surgery to place the abdominal organs inside her body.
After her operation she will recover in the neonatal intensive care unit at the Children's Hospital at Westmead.
In the meantime the pair have organised an event to raise money for the Miracle Babies Foundation.
The event will be held tomorrow, Thursday, October 24, and is called Bust your Gut for our Girl.
It involves Mr Hibbs and his colleagues running from the The Children's Hospital at Westmead to Liverpool hospital.
There will then be a joint barbecue lunch and activities including a doughnut eating competition with staff from their workplaces, Liverpool council and Liverpool police.
"You feel helpless in a situation like this," Mr Hibbs said. "Sometimes you feel like you can actually do something in the long run and this was a way we could benefit our baby girl and other sick children."
Ms Cutler added: "You can either sit and feel sorry for yourself or you can be proactive."
Details: donations: tinyurl.com /kk63yb7.